Dear Friends,
While the kids are home for their first day with Amy, they are going to need some undivided attention from their Mommy. Amy and Bryan would be happy to talk to you on the phone, but not until Wednesday. Tomorrow they would like to have dedicated time with the kids.
Amy expects that sometime this week she might sit down and a pound out an e-mail to you all, so this might be the last one that is forced upon you from me.
I know Bryan and Amy are thankful for your love and support, and because she is my dear friend, so am I.
Blessings,
Laurie
Wednesday, July 1, 2009
SUN 6/28 - Amy Update
Dear Friends,
Just a quick update tonight. I spent a little time with Amy and Bryan this afternoon. Amy is in excellent spirits and looks beautiful. She is very grateful to be in the clear as far as cancer cells are concerned. My intention was to go down to the hospital and sit with her, not talk or require anything of her, just sit. But she had other plans and we had wonderful conversation. We talked about scripture - sovereignty of God issues, dumb things people say, we came up with several titles of the book I think she should write, The Year of Peyton, the trig teacher at Catholic School, all kinds of things. She didn't seem to want to nap today so that she would sleep good tonight.
The phantom itching started up a bit tonight. Under her arm itches, but because it is numb, she can't really find where to scratch. That might get a little frustrating during the night - a little prayer request there. She already has decent mobility in her right arm. The incisions (I think) are uncomfortable and they are what limits the motion. She's got a little catheter where her IV used to be, and that is all she's hooked up to now.
She has a male night nurse tonight. He is VERY talkative. Since Amy is the only patient in the ICU, he doesn't have much to do. There is no such thing as a quick question for him. He likes to talk! Within a few minutes, we learned that he is Army Reserve, civilian nurse, has been an EMT (or Paramedic), and a medic. I hope Amy will be able to get some sleep.
Two things I need to correct. In the first update I sent, I said the surgeon removed a sand dollar sized piece of muscle for biopsy - it was actually a silver dollar sized piece of muscle.
Also, the reason she was in ICU to start with was because of the chest tube thing they need to put in to get the air out of her chest. If you'll remember I had forgotten the reason yesterday.
Tomorrow is release day! It sounds like Dr. Mayfield may come early in the morning. I hope I can get over to her house before they get there so that I can decorate, but it looks doubtful. If any of you are close and can go put up a sign or two, that would be great.
I don't know that she'll be looking at e-mail anytime soon. If you want to send her a message, you could send it to me and I'll print it out for her. I know that would make her smile.
Thank you all for standing in the gap for Bryan and Amy. They are both extraordinary people and are handling this in a way that would make you all proud.
Blessings,Laurie
SAT 6/27 - Amy Update
Dear Friends,
I just left Amy about an hour ago. She is in ICU, not because she is in critical condition. There is a reason, but unfortunately I left that information somewhere between there and home. Forgive me. I’m old and tired.
She has great color in her face, she’s alert and talking, making sense even through the morphine. I’m not shocked by that as her official title in my life is “The Smartest Woman I’ve Ever Met”. I have trouble envisioning a time when she wouldn’t be coherent. Anyway, she didn’t look at all like a woman who has just been through major surgery. I did learn a piece of good news, but Bryan and Amy’s very good friend, Betsy, has worded it perfectly, so I’ll cut and paste.
got a call from Amy this morning and wanted to pass along something she said. The oncologist wanted to do chemo first, surgery second. We were praying that they would feel convicted to do whatever plan the Lord had for them. The surgeon got choked up in the meeting and said (he is a believer) that he had been having dreams about her and that they were to do surgery first, although they were concerned that they couldn't get all the cancer. The decision was heart wrenching, but they went with surgery first and had a successful and clean surgery. Isn't it exciting to see how our Lord works? My mother in law always says "The Lord works through prayer!" How true! I want this to be an encouragement to all the prayer warriors out there!
Previous to surgery, Amy had said that there were some lymph nodes under her collarbone that were cancerous but not accessible. This morning she told me that during surgery, the surgeon stuck his hand up underneath her collarbone and swept them all out. So now, as Amy says, everything in her body that glowed in the MRI is now gone. Praise God for His wonderful provision!
As for coming home, she said she needs to be able to demonstrate that she can move around on her own before her doctor will release her. She also needs to be able to leave the morphine pump at the hospital (rats!). She said possibly tomorrow, but more likely Monday. I’ll be sure and let you know what I hear.
She still has a long row to hoe, so we’ll keep loving on her and taking good care of her.
Blessings,
Laurie
I just left Amy about an hour ago. She is in ICU, not because she is in critical condition. There is a reason, but unfortunately I left that information somewhere between there and home. Forgive me. I’m old and tired.
She has great color in her face, she’s alert and talking, making sense even through the morphine. I’m not shocked by that as her official title in my life is “The Smartest Woman I’ve Ever Met”. I have trouble envisioning a time when she wouldn’t be coherent. Anyway, she didn’t look at all like a woman who has just been through major surgery. I did learn a piece of good news, but Bryan and Amy’s very good friend, Betsy, has worded it perfectly, so I’ll cut and paste.
got a call from Amy this morning and wanted to pass along something she said. The oncologist wanted to do chemo first, surgery second. We were praying that they would feel convicted to do whatever plan the Lord had for them. The surgeon got choked up in the meeting and said (he is a believer) that he had been having dreams about her and that they were to do surgery first, although they were concerned that they couldn't get all the cancer. The decision was heart wrenching, but they went with surgery first and had a successful and clean surgery. Isn't it exciting to see how our Lord works? My mother in law always says "The Lord works through prayer!" How true! I want this to be an encouragement to all the prayer warriors out there!
Previous to surgery, Amy had said that there were some lymph nodes under her collarbone that were cancerous but not accessible. This morning she told me that during surgery, the surgeon stuck his hand up underneath her collarbone and swept them all out. So now, as Amy says, everything in her body that glowed in the MRI is now gone. Praise God for His wonderful provision!
As for coming home, she said she needs to be able to demonstrate that she can move around on her own before her doctor will release her. She also needs to be able to leave the morphine pump at the hospital (rats!). She said possibly tomorrow, but more likely Monday. I’ll be sure and let you know what I hear.
She still has a long row to hoe, so we’ll keep loving on her and taking good care of her.
Blessings,
Laurie
WED 6/24 - Good News
From: Laura White
All -
Just heard from Mom - Amy's scan today to determine if the cancer had spread to anywhere else in her body was negative. So take that, cancer!
The surgery scheduled for Friday will go ahead as planned but this is great news for now.
My understanding is that the results of the genetic testing will not be back for a few weeks. At that time, Amy and her doctors will know whether or not she will need additional surgery. If I've got this wrong, I'm sure Amy will update us all with actual facts when she has some time.
That's all for now -
Laura
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From: Marc and MJ Lauzon
Great News Amy. Notice the pink, it's the Breast Cancer color. Once you are through will your treatment, we will all have to walk with you in one of those "Beat Breast Cancer" walks.
MJ
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From: Dad
I just talked to AIM, she starts the "O" at about 11 AM, was told it will last about 6 1/2 hours ( I hope I got that right). One reason is that after they get the tumor out then they will go to the other side a put in a shunt for the Chemo.
Aim is starting to feel the impact of this whole thing, she needs our prayers.
Bryan will be at the hospital, I believe Mom will be at home to give us any info as it is received.
Please keep AIM in your thoughts tomorrow and keep asking the LORD to watch over AIM. ......me
All -
Just heard from Mom - Amy's scan today to determine if the cancer had spread to anywhere else in her body was negative. So take that, cancer!
The surgery scheduled for Friday will go ahead as planned but this is great news for now.
My understanding is that the results of the genetic testing will not be back for a few weeks. At that time, Amy and her doctors will know whether or not she will need additional surgery. If I've got this wrong, I'm sure Amy will update us all with actual facts when she has some time.
That's all for now -
Laura
--------------------------------------------------------------------------------
From: Marc and MJ Lauzon
Great News Amy. Notice the pink, it's the Breast Cancer color. Once you are through will your treatment, we will all have to walk with you in one of those "Beat Breast Cancer" walks.
MJ
--------------------------------------------------------------------------------
From: Dad
I just talked to AIM, she starts the "O" at about 11 AM, was told it will last about 6 1/2 hours ( I hope I got that right). One reason is that after they get the tumor out then they will go to the other side a put in a shunt for the Chemo.
Aim is starting to feel the impact of this whole thing, she needs our prayers.
Bryan will be at the hospital, I believe Mom will be at home to give us any info as it is received.
Please keep AIM in your thoughts tomorrow and keep asking the LORD to watch over AIM. ......me
SAT 6/20 - Where's Mom??
From: Marc and MJ Lauzon
WHERE'S MOM / AUNTIE ANNE?
I couldn't resist. I know Laura said there was hail in Chicago, but never heard otherwise until I opened Amy's email this morning to see if "the package had arrived".
On another note, our neice Rachel married Rob and his mother was diagnosed at 32 with breast cancer with 4 children under 8. She is still in remission, several grandchildren later. The Lauzon clan has you, Amy, in their prayers.
So where is Mom, did she go back home? Did Dad wait for her and take her home? Did she camp out at Laura and Trey's place?
MJ
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From: Dad
And the answer is... you have one hell of a mom, aunt & sister in law.
Mom is stronger than a mother bear with her cubs. Mom stayed at the airport till 12:10 am (that is 11 hours) seeking out a way to get to Amy.
Leslie & Laura were in contact with mom (and kept me in the loop) and Les finally picked her up at the a/p.
Thank GOD we have a GREAT FAMILY
Les proceeded to call United and get her on a flight (first class) at 9:30 am today.
I say this very honestly ... I would rather face the DEVIL than deal with Les when she is on a mission....
One other thing, mom handled this far better than me........
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From: Amy
Yes, the birdie is in the nest. What a long, long frustrating day for Mom. But today's flight was smoothe and she's all settled in.
As for the question you all wondering: What about the Bagalini???? I have one just like it! Ha! It's my travel purse that Janice bought for me when we went to Europe together. I used it back in October when I was on crutches and wanted to tote around my medications and other items.
Mom saw it and thought, "Heeeeeeyyyy. . . That is a nice purse." Hence the Bagalini. And I'm with her--they are absolutely ideal for air travel.
WHERE'S MOM / AUNTIE ANNE?
I couldn't resist. I know Laura said there was hail in Chicago, but never heard otherwise until I opened Amy's email this morning to see if "the package had arrived".
On another note, our neice Rachel married Rob and his mother was diagnosed at 32 with breast cancer with 4 children under 8. She is still in remission, several grandchildren later. The Lauzon clan has you, Amy, in their prayers.
So where is Mom, did she go back home? Did Dad wait for her and take her home? Did she camp out at Laura and Trey's place?
MJ
--------------------------------------------------------------------------------
From: Dad
And the answer is... you have one hell of a mom, aunt & sister in law.
Mom is stronger than a mother bear with her cubs. Mom stayed at the airport till 12:10 am (that is 11 hours) seeking out a way to get to Amy.
Leslie & Laura were in contact with mom (and kept me in the loop) and Les finally picked her up at the a/p.
Thank GOD we have a GREAT FAMILY
Les proceeded to call United and get her on a flight (first class) at 9:30 am today.
I say this very honestly ... I would rather face the DEVIL than deal with Les when she is on a mission....
One other thing, mom handled this far better than me........
--------------------------------------------------------------------------------
From: Amy
Yes, the birdie is in the nest. What a long, long frustrating day for Mom. But today's flight was smoothe and she's all settled in.
As for the question you all wondering: What about the Bagalini???? I have one just like it! Ha! It's my travel purse that Janice bought for me when we went to Europe together. I used it back in October when I was on crutches and wanted to tote around my medications and other items.
Mom saw it and thought, "Heeeeeeyyyy. . . That is a nice purse." Hence the Bagalini. And I'm with her--they are absolutely ideal for air travel.
SAT 6/20 - Poor Mom!
From: Amy Ponce
After waiting for several hours in O'Hare, her flight got cancelled all together. I can only assume that SOMEONE will call us tomorrow with her new flight info for whenever it gets re-scheduled.
Speaking of iPhones, I am told there is an application on them that will "read" a song that it "hears" and tell you the title and artist of it. Now all I have to do is find someone who owns one with this application, drag him/her with it to the movie theater on Post, and hope that this theater plays the same refreshment trailer music as the theater in Korea did, hence leading me closer to my own copy of "Marathon." Note: It didn't even occur to me that the theater on this post might be using the same refreshment trailer until a friend who is military suggested it.
Alternatively, my friend, Suzanne, is on the hunt for it. She was in the Army and remembers it. I'll keep you posted on this important pursuit.
We went to my consult with the oncologist today. I'm very happy and comfortable with him. He's a TOTAL egg-head. Fairly young, which is good. Has an MD and PhD and his clinic participates in trials, all of which indicates that he's on top of the game, so to speak. We still need a lot more data before we'll know anything for certain about treatment. If this cancer is estrogen-receptive, then I'll be able to take a hormone treatment in addition to the chemo and radiation, which would reduce chances of recurrence to 15%. (Not that stats mean a lot to me.)
We're waiting on the PET scan that happens on Wednesday to determine if and where the cancer has spread. But this test will only pick up something bigger than 1/2 a centimeter, so we'll still procede with the chemo as though there are more cancer cells in my body somewhere. If the scan comes up "clean," then surgery will go ahead as planned. If they find something troublesome, then everything changes. Again, it's hard to wait to learn these things. On the other hand, I am so hopeful, and I am now thinking that if the scan is clean, then the road from here to recovery is straight-forward. Kind of a like a project I'll be working on this year. "What did I do back in '09? Let me see. . . Oh yeah, I was busy doing cancer that year."
The first couple of days after the surgical consult, when we learned just how extreme this is, and that the mastectomy was necessary, all the emotion of 2 weeks caught up to me. It was a sad 36 hours or so and I lost a lot a sleep. But, truly, I feel over that big hump. I kind of want a double mastectomy right now just so I won't have the axe of re-occurence hanging over me for the rest of my life, but the surgeon doesn't recommend that. Anyway. I'm feeling pretty OK about what has to be done.
My next appt with him is 10 July, about 2 weeks after surgery, and then we'll come up with a schedule, so I'll know more about when we'll need help.
One thing from today's consult was especially comforting to me: The doctor examined me himself and was notably surprised at what the tumor feels like. Namely, that it doesn't feel like much. That it doesn't feel like most tumors do. That it kind of feels like a swollen lymph node! (Which is what I thought it was for a couple months, but it didn't go away, which is why I went in.) I say "comforting," because it's pretty normal to have that little doubt of "what if I'd gone in right away?"--Given its size now, even if I had gone in back in February, it still would have been a pretty big-ass tumor. I'm just saying: I'm not crazy! Even the oncologist said he wouldn't have thought it was cancer! This feels like a load off.
About calling. Sure, you're all welcome to call. In the evenings is ideal because the kids will be asleep and a phone conversation wouldn't detract from my attention to them. On the other hand, during the day is fine, too, and if I'm in the middle of something, I just won't answer. :)
Re: Mom's 'bagallini'--does anyone else think this sound like an item on an Italian Bistro's Express Lunch menu?
After waiting for several hours in O'Hare, her flight got cancelled all together. I can only assume that SOMEONE will call us tomorrow with her new flight info for whenever it gets re-scheduled.
Speaking of iPhones, I am told there is an application on them that will "read" a song that it "hears" and tell you the title and artist of it. Now all I have to do is find someone who owns one with this application, drag him/her with it to the movie theater on Post, and hope that this theater plays the same refreshment trailer music as the theater in Korea did, hence leading me closer to my own copy of "Marathon." Note: It didn't even occur to me that the theater on this post might be using the same refreshment trailer until a friend who is military suggested it.
Alternatively, my friend, Suzanne, is on the hunt for it. She was in the Army and remembers it. I'll keep you posted on this important pursuit.
We went to my consult with the oncologist today. I'm very happy and comfortable with him. He's a TOTAL egg-head. Fairly young, which is good. Has an MD and PhD and his clinic participates in trials, all of which indicates that he's on top of the game, so to speak. We still need a lot more data before we'll know anything for certain about treatment. If this cancer is estrogen-receptive, then I'll be able to take a hormone treatment in addition to the chemo and radiation, which would reduce chances of recurrence to 15%. (Not that stats mean a lot to me.)
We're waiting on the PET scan that happens on Wednesday to determine if and where the cancer has spread. But this test will only pick up something bigger than 1/2 a centimeter, so we'll still procede with the chemo as though there are more cancer cells in my body somewhere. If the scan comes up "clean," then surgery will go ahead as planned. If they find something troublesome, then everything changes. Again, it's hard to wait to learn these things. On the other hand, I am so hopeful, and I am now thinking that if the scan is clean, then the road from here to recovery is straight-forward. Kind of a like a project I'll be working on this year. "What did I do back in '09? Let me see. . . Oh yeah, I was busy doing cancer that year."
The first couple of days after the surgical consult, when we learned just how extreme this is, and that the mastectomy was necessary, all the emotion of 2 weeks caught up to me. It was a sad 36 hours or so and I lost a lot a sleep. But, truly, I feel over that big hump. I kind of want a double mastectomy right now just so I won't have the axe of re-occurence hanging over me for the rest of my life, but the surgeon doesn't recommend that. Anyway. I'm feeling pretty OK about what has to be done.
My next appt with him is 10 July, about 2 weeks after surgery, and then we'll come up with a schedule, so I'll know more about when we'll need help.
One thing from today's consult was especially comforting to me: The doctor examined me himself and was notably surprised at what the tumor feels like. Namely, that it doesn't feel like much. That it doesn't feel like most tumors do. That it kind of feels like a swollen lymph node! (Which is what I thought it was for a couple months, but it didn't go away, which is why I went in.) I say "comforting," because it's pretty normal to have that little doubt of "what if I'd gone in right away?"--Given its size now, even if I had gone in back in February, it still would have been a pretty big-ass tumor. I'm just saying: I'm not crazy! Even the oncologist said he wouldn't have thought it was cancer! This feels like a load off.
About calling. Sure, you're all welcome to call. In the evenings is ideal because the kids will be asleep and a phone conversation wouldn't detract from my attention to them. On the other hand, during the day is fine, too, and if I'm in the middle of something, I just won't answer. :)
Re: Mom's 'bagallini'--does anyone else think this sound like an item on an Italian Bistro's Express Lunch menu?
FRI 6/19 - Mom's Flight
From: Anne Ferrone
Hi, Kids!
I'm adding to this "string" to let you know I am completely packed and ready! The baggage charge of $15.00 there, $15.00 back, is going to be earned by those baggage handlers, hope they're wearing their black-band support to heave it onto all those conveyances throughout the trip - they are going to need extra muscle power!
And about my Baggallini - JOHN - if you had read the WHOLE sentence, you would have noticed that I stated the Baggallini is a travel purse - and even though you have envisioned me digging down to the bottom of some sort of satchel to get whatever I need and painted a pretty picture of my holding up all kinds of lines, that will not happen! MY purse dimensions are 5" x 7" - fully packed, 3-1/2" thick! I have seven separate compartments - my boarding pass (done electronically at home thanks to Laura's travel expertise in telling us how to go about it - and by the way, I have been "bumped up" to the next level of frequent-flyer miles. Though Dad and I travel together quite often, he also sends me off alone and if you count Korea, I am WAY ahead of him on travel miles)
So, back to my 1) boarding pass - in a special pocket for quick retrieval, 2) my first zippered compartment in the front flap carried my cash and coins - granted, the pocket is small and though the bills come out easily enough, my fingers will have to dig around for the coins when I want to pay for something with exact change. YES, I'm one of those little old ladies that like to pay exact amount when there's a lot of loose change so I will just have to hold up the line a bit. 3) Another zippered compartment holds my camera and extra batteries, 4) one compartment for quick access to my cough drops, 5) main compartment holds my pen and small notebook, pocket calendar, 6) a pocket for my glasses, 7) slots for my charge cards - easy access to the plastic - 8) and a secret compartment for my extra cash and check book! 9) Another zippered compartment to hold my airline ticket with a window slot for my I.D. card - perfect organization.
AND, I will have no trouble remembering where everything is because I loaded up the purse yesterday and went out SHOPPING to practice! Had no trouble whipping out the credit cards, know where everything is - the Baggallini worth every penny I spent.
So I am on my way with my extra heavy suitcase and my trim little travel purse - HERE I COME, AMY!!!
Love, Mom
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From: Castillo, Janice
Ok . . . clearly Dad has not passed on his paranoia to Mom – all that information out there for whomever would want to hack in and learn about what Mom carries in her Baggalinni (dum – dum – dum) (that was foreshadowing music)
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From: Laura White
Mom -
do you have room in that baggalini for a really big book? I have a feeling that you'll be spending some time in the airport this afternoon - it's hailing by us right now and although I'm sure it says that your flight is still on time, it's likely that all flights will be backed up.
From someone who spent from 4:00 until 8:30 at O'Hare on Monday waiting for my 5:00 flight to depart - Have fun.
Amy -
Dad just called - be sure to check the United flight status before you leave for the airport to pick up Mom.
http://www.ua2go.com/flifo/FlightSummary.do?Check=&date=20090619&fltNbr=6214&deparr=D&orig=&dest=&time=00002359
Because I'm sure you wouldn't have figured that out...
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From: Marc and MJ Lauzon
Thanks Janice for the forward, the Indians are being nice and not hijacking the super info highway because Mom's email came in on time. All Mom needs is an iphone, I think, that can have books downloaded onto it and she can read on the screen. SLim enough for the purse, and then she will have her book. I caught a friend at a meeting reading a book on his iphone. Alright it was a PTA meeting at school and not all that much was going on, but I know that technology is out there.
MJ
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From: John Ferrone
Hold the phone, everyone! According to Mom's highly detailed explanation of her Baggalini-thing-a-ma-jingy... she has 9 (NINE) compartments, not 7. See below... scroll down to her message and you'll see that I added the numbers. Of course, the credit card slots might not count as a separate pocket, but if that's true, there's still 8.
What's really scary about her description is that when Susan read it, Susan said it reminded her of me! Perhaps that's why I found Mom's email so amusing. I just wish I had a picture of Mom's content expression (the one where she has a twinkle in her eye and a satisfactory smirk to go along with it) each time she makes perfect use of her Baggathing.
J
Hi, Kids!
I'm adding to this "string" to let you know I am completely packed and ready! The baggage charge of $15.00 there, $15.00 back, is going to be earned by those baggage handlers, hope they're wearing their black-band support to heave it onto all those conveyances throughout the trip - they are going to need extra muscle power!
And about my Baggallini - JOHN - if you had read the WHOLE sentence, you would have noticed that I stated the Baggallini is a travel purse - and even though you have envisioned me digging down to the bottom of some sort of satchel to get whatever I need and painted a pretty picture of my holding up all kinds of lines, that will not happen! MY purse dimensions are 5" x 7" - fully packed, 3-1/2" thick! I have seven separate compartments - my boarding pass (done electronically at home thanks to Laura's travel expertise in telling us how to go about it - and by the way, I have been "bumped up" to the next level of frequent-flyer miles. Though Dad and I travel together quite often, he also sends me off alone and if you count Korea, I am WAY ahead of him on travel miles)
So, back to my 1) boarding pass - in a special pocket for quick retrieval, 2) my first zippered compartment in the front flap carried my cash and coins - granted, the pocket is small and though the bills come out easily enough, my fingers will have to dig around for the coins when I want to pay for something with exact change. YES, I'm one of those little old ladies that like to pay exact amount when there's a lot of loose change so I will just have to hold up the line a bit. 3) Another zippered compartment holds my camera and extra batteries, 4) one compartment for quick access to my cough drops, 5) main compartment holds my pen and small notebook, pocket calendar, 6) a pocket for my glasses, 7) slots for my charge cards - easy access to the plastic - 8) and a secret compartment for my extra cash and check book! 9) Another zippered compartment to hold my airline ticket with a window slot for my I.D. card - perfect organization.
AND, I will have no trouble remembering where everything is because I loaded up the purse yesterday and went out SHOPPING to practice! Had no trouble whipping out the credit cards, know where everything is - the Baggallini worth every penny I spent.
So I am on my way with my extra heavy suitcase and my trim little travel purse - HERE I COME, AMY!!!
Love, Mom
--------------------------------------------------------------------------------
From: Castillo, Janice
Ok . . . clearly Dad has not passed on his paranoia to Mom – all that information out there for whomever would want to hack in and learn about what Mom carries in her Baggalinni (dum – dum – dum) (that was foreshadowing music)
--------------------------------------------------------------------------------
From: Laura White
Mom -
do you have room in that baggalini for a really big book? I have a feeling that you'll be spending some time in the airport this afternoon - it's hailing by us right now and although I'm sure it says that your flight is still on time, it's likely that all flights will be backed up.
From someone who spent from 4:00 until 8:30 at O'Hare on Monday waiting for my 5:00 flight to depart - Have fun.
Amy -
Dad just called - be sure to check the United flight status before you leave for the airport to pick up Mom.
http://www.ua2go.com/flifo/FlightSummary.do?Check=&date=20090619&fltNbr=6214&deparr=D&orig=&dest=&time=00002359
Because I'm sure you wouldn't have figured that out...
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From: Marc and MJ Lauzon
Thanks Janice for the forward, the Indians are being nice and not hijacking the super info highway because Mom's email came in on time. All Mom needs is an iphone, I think, that can have books downloaded onto it and she can read on the screen. SLim enough for the purse, and then she will have her book. I caught a friend at a meeting reading a book on his iphone. Alright it was a PTA meeting at school and not all that much was going on, but I know that technology is out there.
MJ
--------------------------------------------------------------------------------
From: John Ferrone
Hold the phone, everyone! According to Mom's highly detailed explanation of her Baggalini-thing-a-ma-jingy... she has 9 (NINE) compartments, not 7. See below... scroll down to her message and you'll see that I added the numbers. Of course, the credit card slots might not count as a separate pocket, but if that's true, there's still 8.
What's really scary about her description is that when Susan read it, Susan said it reminded her of me! Perhaps that's why I found Mom's email so amusing. I just wish I had a picture of Mom's content expression (the one where she has a twinkle in her eye and a satisfactory smirk to go along with it) each time she makes perfect use of her Baggathing.
J
THU 6/18 - More Family Commentary
From: John Ferrone
Re: string with all the addresses
My biggest question is this... why the hell is it called a Baggallini? I mean, seriously... is this marketing genius, or marketing laziness? Regardless, I can picture Mom spending many long minutes digging through her Baggallini looking for something she put in one of the pockets, but not being able to find it, and then after she finds it turning to the person next to her and explaining all about how wonderful the Baggallini is, but that she needs a GPS system to locate shit inside of it. haha... okay, she wouldn't swear, but you know that's exactly what's going to happen.
Amy, although I'm closest geographically, it might take me the longest to get there because airplanes don't exist except in Omaha, and my drive would be 7 hours, as you well know. But if you need anything, even spontaneously (7-8 hours wait time) there is a good chance I can get out there right away.
Do you like to be called? And if so, what is a good time to call?
Love,
John
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From: Angela Schullo
Re: string with all the addresses
Amy! Glad to be a part of the trail..my mom called me last night with the news. I have now read all and I am all caught up. With that said I want to tell you that you are and have always been such a beautiful person, your faith has always been a strength in you that I have admired. I believe that God gives us what we can handle and in this family each of has had our share of what that is...and although we can't compare what has been given to each of us we just have to plant our feet firmly and be there for one another in whatever way we can. So my dear cousin I am here for you, while Laura is watching the children I can handle the puking ;). With God's love and our help this cancer doesn't have a chance! XO
--------------------------------------------------------------------------------
From: Mary Jean Lauzon
Re: string with all the addresses
I have a request. Any time Mom or Dad emails in the string, somebody reply right away because I don't get Mom's replys. Those damn Indians messing with my electronics again.
For Michelle and maybe Angela and Bill, my house does weird electronic things and I blame the American Indians that used to roam around here. In the process of building our home, Marc dug up an old Indian burn pit. We promptly destroyed and kept on building.
Amy, remember I am the math major and words are not my thing. As all have mentioned, thank you so much for being so calm and together with your informing us of your path ahead. It has helped me tremendously. I am also looking into the mileage from Carbondale to Colorado Springs. It seems to be a fairly straight shot.
A story to make you all laugh. Our train ride from LA to Solana Beach was a 2 hour commuter ride. John sat at the window with his face plastered to it. Marc said he watched his eyes going back and forth at a rapid pace. By the end of the ride, he did not look the best. We got off and walked the 7 short blocks to the hotel. The boys showered first, then Marc (hadn't showered on the train because it was to bumpy of a ride), and while I was enjoying a nice hot shower, John lost his cookies, (that would be code so as not to upset Laura or Janice) and MARC had to deal with it. That was the one and only time I did not have to deal with a kid being sick.
Love
MJ
Re: string with all the addresses
My biggest question is this... why the hell is it called a Baggallini? I mean, seriously... is this marketing genius, or marketing laziness? Regardless, I can picture Mom spending many long minutes digging through her Baggallini looking for something she put in one of the pockets, but not being able to find it, and then after she finds it turning to the person next to her and explaining all about how wonderful the Baggallini is, but that she needs a GPS system to locate shit inside of it. haha... okay, she wouldn't swear, but you know that's exactly what's going to happen.
Amy, although I'm closest geographically, it might take me the longest to get there because airplanes don't exist except in Omaha, and my drive would be 7 hours, as you well know. But if you need anything, even spontaneously (7-8 hours wait time) there is a good chance I can get out there right away.
Do you like to be called? And if so, what is a good time to call?
Love,
John
--------------------------------------------------------------------------------
From: Angela Schullo
Re: string with all the addresses
Amy! Glad to be a part of the trail..my mom called me last night with the news. I have now read all and I am all caught up. With that said I want to tell you that you are and have always been such a beautiful person, your faith has always been a strength in you that I have admired. I believe that God gives us what we can handle and in this family each of has had our share of what that is...and although we can't compare what has been given to each of us we just have to plant our feet firmly and be there for one another in whatever way we can. So my dear cousin I am here for you, while Laura is watching the children I can handle the puking ;). With God's love and our help this cancer doesn't have a chance! XO
--------------------------------------------------------------------------------
From: Mary Jean Lauzon
Re: string with all the addresses
I have a request. Any time Mom or Dad emails in the string, somebody reply right away because I don't get Mom's replys. Those damn Indians messing with my electronics again.
For Michelle and maybe Angela and Bill, my house does weird electronic things and I blame the American Indians that used to roam around here. In the process of building our home, Marc dug up an old Indian burn pit. We promptly destroyed and kept on building.
Amy, remember I am the math major and words are not my thing. As all have mentioned, thank you so much for being so calm and together with your informing us of your path ahead. It has helped me tremendously. I am also looking into the mileage from Carbondale to Colorado Springs. It seems to be a fairly straight shot.
A story to make you all laugh. Our train ride from LA to Solana Beach was a 2 hour commuter ride. John sat at the window with his face plastered to it. Marc said he watched his eyes going back and forth at a rapid pace. By the end of the ride, he did not look the best. We got off and walked the 7 short blocks to the hotel. The boys showered first, then Marc (hadn't showered on the train because it was to bumpy of a ride), and while I was enjoying a nice hot shower, John lost his cookies, (that would be code so as not to upset Laura or Janice) and MARC had to deal with it. That was the one and only time I did not have to deal with a kid being sick.
Love
MJ
THU 6/18 - String with all the addresses
Hey Everyone
1. Hi Angela and Michelle! I didn't intentionally leave you off the list. I actually thought Angella's address was on there and I didn't have Michelle's, though I knew Mom was keeping you updated.
2. The news can spread far and wide at this point, so don't worry if you've already told people and feel free to tell whomever else.
3. Before you start calling me "Lefty" (as per Leslie's suggestion) and getting all attached to the one that remains, you should know that I'll also do a genetic screening pretty soon. I'm told that a cancer like this in someone so young is often from a gene, and that if one has this gene, one is garaunteed to get breast cancer at some point. Now, it's hard to believe that I have the gene because there are a LOT of breasts that I'm blood-related to, none of which has been cancerous. But the Dr. says I might just be numero uno. And if it comes back positive, then for preventative measures, the second one comes off and my ovaries come out. See? You didn't think there was any more bad news to come. Here's the kicker: even if the ovaries come out, the uterus stays in and because I'd start taking hormones, I would still menstruate!!! What the hell???? But these are all future concerns. I'm just saying, 'Lefty' might not be such a good idea.
4. Leslie's last e-mail (not on this string) said, "'Marathon' is not a song.'" You are SOOOOO busted, Leslie. Didn't you read my story??? The problem is that though I know the title, I haven't been able to find it on-line yet. There are about 120 hits at the allmusicguide.com but I haven't had time to check them yet. Still, Bill is right. If I do manage to get ahold of it, there will be mandatory morning dances.
5. I'm so glad Mom is coming. Last night was a very long night. Bryan and I hardly slept and at this point, I've pretty much collapsed. Thankfully, I'm not crying out of fear or anxiety. I'm just emotionally overwhelmed and just. . .sad about the whole thing. But your e-mails are so wonderful to read. There's nothing like a good puking joke to lift the spirits.
6. My oncology and radiation appointment is tomorrow morning. I hope to have a good idea of my regimen and what to expect from it, and then I'll have a better idea of what will be most helpful.
I love you all!
Amella!
1. Hi Angela and Michelle! I didn't intentionally leave you off the list. I actually thought Angella's address was on there and I didn't have Michelle's, though I knew Mom was keeping you updated.
2. The news can spread far and wide at this point, so don't worry if you've already told people and feel free to tell whomever else.
3. Before you start calling me "Lefty" (as per Leslie's suggestion) and getting all attached to the one that remains, you should know that I'll also do a genetic screening pretty soon. I'm told that a cancer like this in someone so young is often from a gene, and that if one has this gene, one is garaunteed to get breast cancer at some point. Now, it's hard to believe that I have the gene because there are a LOT of breasts that I'm blood-related to, none of which has been cancerous. But the Dr. says I might just be numero uno. And if it comes back positive, then for preventative measures, the second one comes off and my ovaries come out. See? You didn't think there was any more bad news to come. Here's the kicker: even if the ovaries come out, the uterus stays in and because I'd start taking hormones, I would still menstruate!!! What the hell???? But these are all future concerns. I'm just saying, 'Lefty' might not be such a good idea.
4. Leslie's last e-mail (not on this string) said, "'Marathon' is not a song.'" You are SOOOOO busted, Leslie. Didn't you read my story??? The problem is that though I know the title, I haven't been able to find it on-line yet. There are about 120 hits at the allmusicguide.com but I haven't had time to check them yet. Still, Bill is right. If I do manage to get ahold of it, there will be mandatory morning dances.
5. I'm so glad Mom is coming. Last night was a very long night. Bryan and I hardly slept and at this point, I've pretty much collapsed. Thankfully, I'm not crying out of fear or anxiety. I'm just emotionally overwhelmed and just. . .sad about the whole thing. But your e-mails are so wonderful to read. There's nothing like a good puking joke to lift the spirits.
6. My oncology and radiation appointment is tomorrow morning. I hope to have a good idea of my regimen and what to expect from it, and then I'll have a better idea of what will be most helpful.
I love you all!
Amella!
THU 6/18 - The Family Response
From: Marc and MJ Lauzon
Re: surgical consult
Amy, What kind of help will you, Bryan and the kids be needing?
Would you like us to try and arrange our schedules to come out and help?
Mary Jean
--------------------------------------------------------------------------------
From: Castillo, Janice
RE: surgical consult
I’m on board if you want us to come out for extra help . . . just let us know. Though I have to say, I may not be the best candidate to help if there will be any puking involved (remember the incident of the pink bubblegum ice cream?) – and no, having children has not cured me in this respect – but I’m more than happy to be able to help any other way, like play with Gemma and Josh (out of hearing distance) while someone holds a bowl for you. ;)
And thank you for being so positive in your emails – obviously being positive is good, but I appreciate you passing on the good vibes - I’ve been comforted when reading them (which seems odd given that you have cancer and it should be us sending you words of comfort and good thoughts, but I appreciate it nonetheless.) Anyhoo, let us know what you need.
p.s. Amy – do you have any objection to me letting friends know – and I ask because of my friends’ siblings who are your former classmates and I wasn’t sure if you wanted to be the subject of the Visitation/IC grapevine (not sure if you’ve told Sarah and Suzanne and any others yet). Of course, the more people saying prayers for you and thinking good thoughts for you the better, but I also don’t want to get the news going if you wanted to tell certain people yourself first.
Stay strong
Janice
--------------------------------------------------------------------------------
From: Laura White
Re: surgical consult
Hooooold on - no one said anything about puking. I was all on board with the coming out to help plan until spewing chunks came up. I'm in the Janice camp - give me kids to take care of (you all know how good I am with kids) but keep me out of earshot when that is going on. I don't know the bubblegum ice cream story but I'm pretty sure Trey will back me on this - you do not want me even thinking about this situation. In fact, I need to move on here before a trip to the bathroom becomes necessary...
So, I just noticed that cousin Bill is on this email stream but not Angela. Is that for insurance purposes? I've added her now - I'm sure Bill was keeping everyone filled in anyway, you know how he likes to talk. And I second Jan's comments re: Amy's positive attitude. Thanks so much for making this easier on the rest of us.
Stay strong
Laura
--------------------------------------------------------------------------------
From: Leslie Ferrone
Re: surgical consult
Clearly I will be the one holding the bowl….what a bunch of wusses!!!! My question is when do you want us to start calling you “Leftie”???? Come on, you all expected Johnnie to come up with that comment, admit it. I of course will be able to come out at pretty much any time (I think Laura and I have the most flexibility) I think once you have a handle on the regiment they will have you follow (after surgery) we can get a better idea. Tell Bryan not to worry, we won’t all come at once….boy, talk about “not just marrying the person, but their ENTIRE family”.
I have already told a few of my closest friends b/c I wanted them to all start praying immediately, so I am sorry if you didn’t want people to know. I have not given out your e/m address, but I know people are going to ask for it, so please let me know when it is ok to do so. I am awed at your composure and humbled by your faith in Christ. I look forward to the continued info., but more so the commentary. I love that you realize how wigged out we all are and that you want to ease our burden. So begins the “Marathon”. I think your warm up is awesome and we are all right there with you. When you begin the actual run, I guess we will be the people on the sideline cheering for you and handing you water!!!
S/F
Leslie
--------------------------------------------------------------------------------
From: Bill Bortolotti
Re: surgical consult
Amy,
Your emails are truly touching. Your faith is an inspiration. And the love of your family is heartwarming.
That being said, your family does not seem to understand their true function when they come to visit. It will not be centered on holding a puke bowl. No, they will be required to wake up each day, assemble their niece, nephew and brother-in-law, and perform an energetic kickline to the tune of Marathon. Knowing Amy, she will require this kickline be performed on demand. So I would suggest you all begin taking a few step aerobics classes.
--------------------------------------------------------------------------------
From: Leslie Ferrone
Re: surgical consult
There is no tune “Marathon”, what are you talking about.???
--------------------------------------------------------------------------------
From: Anne Ferrone
Re: surgical consult
Hi, Kids!
I'm leaving tomorrow for Colorado Springs - going to spend three weeks with Amy - I'm not even going to think about the puking - that comes with chemo, not surgery! Ha, ha, I get there first!
Amy, first thing I did when I learned I'm coming out there - took out my "Baggallini" - it's a travel purse that I treated myself for my birthday last year, designed by an airline stewardess, it's small, just my size, has a zillion pockets for all your important things - all I have to do is remember which pocket has my airline ticket and I.D.
I have also decided since my carry-on last year was too heavy for me to take on board and I had to pay $25.00 to have it checked, I'm going to take my big moby trans-atlantic suitcase - make it worth the charge!
I'm coming, Amy, we will be strong together! Thank you for bringing us all closer through faith and need.
Love, Mom
P.S. - I added Michelle to the list, she has a loving interest in you!
Re: surgical consult
Amy, What kind of help will you, Bryan and the kids be needing?
Would you like us to try and arrange our schedules to come out and help?
Mary Jean
--------------------------------------------------------------------------------
From: Castillo, Janice
RE: surgical consult
I’m on board if you want us to come out for extra help . . . just let us know. Though I have to say, I may not be the best candidate to help if there will be any puking involved (remember the incident of the pink bubblegum ice cream?) – and no, having children has not cured me in this respect – but I’m more than happy to be able to help any other way, like play with Gemma and Josh (out of hearing distance) while someone holds a bowl for you. ;)
And thank you for being so positive in your emails – obviously being positive is good, but I appreciate you passing on the good vibes - I’ve been comforted when reading them (which seems odd given that you have cancer and it should be us sending you words of comfort and good thoughts, but I appreciate it nonetheless.) Anyhoo, let us know what you need.
p.s. Amy – do you have any objection to me letting friends know – and I ask because of my friends’ siblings who are your former classmates and I wasn’t sure if you wanted to be the subject of the Visitation/IC grapevine (not sure if you’ve told Sarah and Suzanne and any others yet). Of course, the more people saying prayers for you and thinking good thoughts for you the better, but I also don’t want to get the news going if you wanted to tell certain people yourself first.
Stay strong
Janice
--------------------------------------------------------------------------------
From: Laura White
Re: surgical consult
Hooooold on - no one said anything about puking. I was all on board with the coming out to help plan until spewing chunks came up. I'm in the Janice camp - give me kids to take care of (you all know how good I am with kids) but keep me out of earshot when that is going on. I don't know the bubblegum ice cream story but I'm pretty sure Trey will back me on this - you do not want me even thinking about this situation. In fact, I need to move on here before a trip to the bathroom becomes necessary...
So, I just noticed that cousin Bill is on this email stream but not Angela. Is that for insurance purposes? I've added her now - I'm sure Bill was keeping everyone filled in anyway, you know how he likes to talk. And I second Jan's comments re: Amy's positive attitude. Thanks so much for making this easier on the rest of us.
Stay strong
Laura
--------------------------------------------------------------------------------
From: Leslie Ferrone
Re: surgical consult
Clearly I will be the one holding the bowl….what a bunch of wusses!!!! My question is when do you want us to start calling you “Leftie”???? Come on, you all expected Johnnie to come up with that comment, admit it. I of course will be able to come out at pretty much any time (I think Laura and I have the most flexibility) I think once you have a handle on the regiment they will have you follow (after surgery) we can get a better idea. Tell Bryan not to worry, we won’t all come at once….boy, talk about “not just marrying the person, but their ENTIRE family”.
I have already told a few of my closest friends b/c I wanted them to all start praying immediately, so I am sorry if you didn’t want people to know. I have not given out your e/m address, but I know people are going to ask for it, so please let me know when it is ok to do so. I am awed at your composure and humbled by your faith in Christ. I look forward to the continued info., but more so the commentary. I love that you realize how wigged out we all are and that you want to ease our burden. So begins the “Marathon”. I think your warm up is awesome and we are all right there with you. When you begin the actual run, I guess we will be the people on the sideline cheering for you and handing you water!!!
S/F
Leslie
--------------------------------------------------------------------------------
From: Bill Bortolotti
Re: surgical consult
Amy,
Your emails are truly touching. Your faith is an inspiration. And the love of your family is heartwarming.
That being said, your family does not seem to understand their true function when they come to visit. It will not be centered on holding a puke bowl. No, they will be required to wake up each day, assemble their niece, nephew and brother-in-law, and perform an energetic kickline to the tune of Marathon. Knowing Amy, she will require this kickline be performed on demand. So I would suggest you all begin taking a few step aerobics classes.
--------------------------------------------------------------------------------
From: Leslie Ferrone
Re: surgical consult
There is no tune “Marathon”, what are you talking about.???
--------------------------------------------------------------------------------
From: Anne Ferrone
Re: surgical consult
Hi, Kids!
I'm leaving tomorrow for Colorado Springs - going to spend three weeks with Amy - I'm not even going to think about the puking - that comes with chemo, not surgery! Ha, ha, I get there first!
Amy, first thing I did when I learned I'm coming out there - took out my "Baggallini" - it's a travel purse that I treated myself for my birthday last year, designed by an airline stewardess, it's small, just my size, has a zillion pockets for all your important things - all I have to do is remember which pocket has my airline ticket and I.D.
I have also decided since my carry-on last year was too heavy for me to take on board and I had to pay $25.00 to have it checked, I'm going to take my big moby trans-atlantic suitcase - make it worth the charge!
I'm coming, Amy, we will be strong together! Thank you for bringing us all closer through faith and need.
Love, Mom
P.S. - I added Michelle to the list, she has a loving interest in you!
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